The iConquer MS initiative is part of a research network that links patients and researchers nationwide at the Patient- Centered Outcomes Research Institute (PCORI). To address these concerns, iConquerMS is encrypting uploaded health records and removing all identifying information before sharing any health data with researchers. Understandably, some people may have questions about how the health records they share will be kept private and safe.
Additionally, participants will be invited to suggest MS research topics of particular interest to them. In turn, those who upload their records will receive regular research updates, progress reports and alerts to new surveys. Participants will be asked to share their electronic health records via an online portal at. To make iConquerMS most effective, organizers are hoping to involve at least 20,000 individuals with MS from a range of ethnicities, ages and disease stages. The program asks people living with MS to share their electronic health records, with hopes that researchers may be able to answer such questions as: Which treatments work best in which people? How helpful are diet and exercise in reducing the impact of MS? And is it possible to predict the course of MS based on others’ experiences? To that end, individuals can participate directly in MS research and help shape its direction through a new nonprofit, patient-centered initiative called iConquerMS.
By looking at health information provided by thousands of people living with MS, researchers may be able to uncover patterns and gain greater insights into the disease-including possible causes, treatments and ways to manage MS for improved quality of life. Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMSWhen it comes to understanding multiple sclerosis, the more data that researchers have, the better.
Iconquer ms for android#
IConquer MS Survey for Researchers and Healthcare Providersĭownload the RealTalk MS App for iOS Devicesĭownload the RealTalk MS App for Android Devicesįollow RealTalk MS on and subscribe to our newsletter at our website, . The National MS Society Presents the Black MS Experience Summit If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at National MS Society COVID-19 Vaccine Guidance for People Living with MS Please shoot me an email or call the RealTalk MS Listener Hotline and share your 526-2283Īnd don't forget to join us in the RealTalk MS Facebook group! And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.
I've always thought about the RealTalk MS podcast as a conversation. Just copy this link & paste it into your text or email: We have a lot to talk about! Are you ready for RealTalk MS?!ĭownload the RealTalk MS app for your iOS or Android device 27:16 In this week's episode, Tyler Campbell talks about his transformational journey from the football field to becoming a motivational and inspirational leader in the MS movement. Instead, Tyler's life was turned upside down by an MS diagnosis.įor some people, that would have been the end of the story. In 2007, Tyler Campbell was a running back at San Diego State, looking forward to a real shot at a career in the NFL.
0 kommentar(er)
